FAQs | FIJI HEART STUDY

Frequently Asked Questions

1. Where will my test be done?

Your blood test will be taken at your nearest Awanui Labs blood collection centre. The blood sample you provide will be used to study molecules such as DNA, RNA, and biomarkers related to heart health and disease. Some of the genetic analysis, such as whole genome sequencing, may be performed by Macrogen Oceania in Seoul, South Korea, while other tests like genotyping will be done in New Zealand-based university laboratories. 

2. How long will it take to get the results back? 

The study is for research purposes, so we will not provide a confirmed genetic diagnosis. However, if you gave informed consent and we discover important and actionable genetic findings are discovered, your doctor will be informed. 

3. How will I receive the results? 

If any important genetic findings related to your heart condition are discovered, with your consent your doctor will be notified. They will discuss the findings with you and may refer you to Genetic Health Service NZ for further support and a confirmed diagnosis. 

4. What is the chance of the test finding an answer? 

The primary goal is to identify genetic factors linked to early coronary artery disease. While there is no guarantee of finding specific genetic answers, the research aims to enhance understanding and treatment of heart disease. 

5. What happens if the test does not find an answer? 

If no actionable genetic findings are discovered, your participation will still contribute valuable data to the study, helping to advance research on heart disease among Peoples of Fiji. 

6. Will it cost me anything to have testing? 

No, there are no costs to you for participating in the study. You will receive a $100 supermarket voucher and a $50 petrol voucher as a token of appreciation for your time and travel expenses. 

7. What might it mean for my family if I participate? 

The study may identify genetic factors that could affect your family's heart health. This information could be useful for early screening and prevention strategies for your relatives. 

8. What support is available for me during testing and after receiving the results? 

You can contact the project lead, Dr. Pritika Narayan, or the Community Advisory Group Chair for any questions or concerns. Māori Health support services are also available, and your doctor will provide support if any actionable findings are discovered.  Find out more.

9. Will I need to go to a clinical genetic service? 

If important genetic findings are identified, your doctor may refer you to Genetic Health Service NZ for a confirmed diagnosis and genetic counselling.

10. Will the test change the way I or my child receive health care? 

If actionable genetic findings are discovered, they may influence your healthcare management. Your doctor will discuss potential changes in treatment or monitoring based on the findings. 

11. How will the test be performed? 

The test involves taking a single blood sample (about 20 mL). The blood sample will be analysed for DNA, RNA, and other biomarkers related to heart health. Your DNA sample may be used for whole genome sequencing. 

12. What if I change my mind and wish to withdraw my consent? 

You can withdraw from the study at any time by contacting the lead investigator. Any identifiable information will be removed from the study and destroyed or returned as per your instructions. 

13. Will my General Practitioner (GP) be told my test results? 

14. How long will it take for me to see the benefits of heart health for Fijians from this study?

Yes, if you consent when you enrol in the study, your GP will be informed of any important and actionable genetic findings related to your heart condition. They will discuss the findings with you and provide appropriate referrals and support. 

The study is part of a three-year research project. Benefits such as improved screening and prevention tools may start to emerge as preliminary findings are analysed and shared with the medical community. However, significant benefits, including new treatments or diagnostic tools, may take several years to develop and implement widely.

15. Will my participation benefit my family and future generations?

While there are no direct benefits to participants, the study aims to enhance early screening, prevention, and treatment of heart disease, particularly for Peoples of Fiji. The findings could lead to better diagnostic tools and treatments tailored to the genetic profiles of Fijians, potentially benefiting future generations by reducing the incidence of heart disease.

16. How does this study respect Fijian cultural values, beliefs, and traditions?

The Fiji Heart Study respects Fijian cultural values, beliefs, and traditions by ensuring all participant-facing materials are developed and reviewed collaboratively with the Community Advisory Group (CAG), ensuring they are culturally appropriate, respectful, and sensitive to the communities involved. The CAG provides ongoing oversight and support to maintain cultural safety throughout the study.

17. How are iTaukei and Indo-Fijian communities involved in the research?

The study is community-led, with guiding principles co-designed with the Fijian community in New Zealand. This involves running community events and talanoa (dialogue) sessions to raise awareness about the research and heart disease risks. The involvement of iTaukei and Indo-Fijian communities ensures that the research is culturally informed and that participants' data is handled safely and respectfully.

18. What happens to my genetic sample after the study is completed?

After the study is completed, genetic samples will be stored securely for up to 10 years. Participants have the option to have their samples returned to New Zealand for disposal if they were sent overseas for analysis. The study ensures that all samples are handled with the utmost care and respect for participants' cultural and spiritual beliefs.

19. How will the results be shared with Fijian communities in a meaningful way?

The results of the study will be shared with Fijian communities through community events, talanoa sessions, and collaboration with community leaders. This approach ensures that the findings are communicated in a culturally appropriate and accessible manner, helping to raise awareness and promote heart health within the community.